Husband suffers from gradual freezing, his wife will never leave, and the employee will not hold the salary for one year.

"I am not a vegetative person, but my body is gradually unable to move; I have something to say, but I can't say it; I want to eat but I can't swallow it; I want to scratch it, but my hand can't move; I want to stand, but the foot I can't stand up; I am clear-headed, but only two eyes will move. Please help me live in dignity and die peacefully." This is a poem written by Taiwanese writer Shen Huixin about the gradual freezing.

For the gradual freezing, we may be strangers, even strange to some medical staff. But this bad luck came to live at home in Kunming North City, 37-year-old Liu Fuping. In 2019, Liu Fuping discovered that his body was abnormal until he was diagnosed in 2019. During the period, the family did not stop treatment, especially the wife, Ms. Xin, who never gave up hope. No matter how hard or hard, you will always stick to it. "I can't give up." Ms. Xin said firmly to the reporter yesterday.

Doctors can only do their best to maintain their lives

Gradually, the reporter came to the Provincial Red Cross Hospital where Liu Fuping was treated with this strange concept. It is known that gradually frozen disease is one of the top five serious diseases in the world, also known as amyotrophic lateral sclerosis. There is currently no cure.

Liu Zimeng, director of the emergency department of internal medicine, told the reporter: "Liu Fuping is unstable and may be at risk at any time. There is no cure for this disease in our hospitals or even internationally. What we can do now is to control the internal infection of patients, such as lung infections and respiratory infections. Then provide appropriate nutrition to the patient and do our best to keep the patient for a period of time."

Ms. Zhang, the head nurse, said: "We also saw the insistence of Xin Sister. I also admire her. Sometimes I will chat with Xin Sister and enlighten her. But this disease can't help. I just hope that I don't want to drag the whole family. collapse."

Wife "I want to hold this home"

Liu Fuping has an old mother in her 70s, a 10-year-old daughter and a 4-year-old son. One old and two small plus their medical expenses, all the burdens are all on Ms. Xin alone, but she never gave up hope. Ms. Xin said: "He is jealous, I can't stop again, I have to hold up this home."

Two years ago, Liu Fuping became more ill, went to seek medical treatment everywhere, did not have more time to take care of the children, and the child was still young, and the mother who was far away from Shandong received Kunming to look after the children. Ms. Xin said that her daughter is now 10 years old and she is in the fifth grade. She has a very good academic record. Ms. Xin told reporters: "My daughter's performance has remained at the upper-middle level. His father has been sick for a few years, and his progress has been particularly fast. The teachers have praised her to me. They are also very sensible and will help with housework. Some things she has. I also understand that her father was crying on the day of her surgery. The son doesn’t know anything at all. His father was eating his lollipop when he was doing surgery. He was not in kindergarten until 4 years old, thinking about the main thoughts. First vote on his father's side."

Employees are still holding on to wages for one year.

In 2008, Liu Fuping opened a computer shop in the north urban area, which is the main technical staff in the store. After Mr. Liu fell ill in 2019, the business of the small store plummeted and he could barely maintain it. The employee was in arrears for one year's salary, but the five employees in the store still kept their posts and stayed behind to support the store.

Ms. Xin told reporters: "In the past few years, I have been thinking about treating my husband. I owe them a year's salary. They don't care what I want, they still work in the store. They also take turns to come to the hospital to help the vigil. I am so grateful to these brothers." In the hospital, the reporter happened to meet Xiao Fu, who was visiting Liu Fuping. Xiao Wang said: "I used to be an apprentice in a computer store. I went home because I got married. I heard about the current situation of the master the day before yesterday. Then I took my wife and daughter to visit."

When talking about the husband and wife of Liu Fuping, Xiao Wang and his wife are full of praise. Xiao Wang’s wife told the reporter: “They treat us like brothers and sisters. Any difficulties will help us. Now they have difficulties, my family. Although not rich, I will do my best to help the Xin sister family.” The reporter also interviewed Xiao Yue, a staff member in the store. Xiao Yue told reporters: “When I first came to Kunming, I didn’t understand anything and found the present. This job, the master family is like to the younger brother, to me, not to collect my money, sometimes to buy things for us. Now the master is tortured by the disease, I can't do anything, all I can do is to put the store Operating well, can ease the burden for them. The brothers in the store think so."

Sign of ring finger stiffness is the fate of advent

In October 2019, Mr. Liu felt that the ring finger of his left hand was a bit stiff and he felt okay. After more than a month, the whole palm to the wrist part was a bit stiff. Mr. Liu followed the old method and stunned, and didn't care too much. But after a while, the entire left arm appeared stiff, no strength, and even the bowl was a little hard. This has caused Mr. Liu to pay attention. Accompanied by his wife, Ms. Xin, went to the hospital for examination and found that the left arm muscle atrophy was serious. The specific cause was not diagnosed. Although it has been doing related adjuvant treatment, the effect is not good, and the condition is getting worse and worse, and the whole body begins to cramp. Ms. Xin told reporters: "Since I was sick, he felt particularly struggling on the fifth floor. The strength of the body was taken a little."

I have no choice but to send my medical records to the Internet International Clinic.

In order to determine the specific cause of Mr. Liu, the two almost ran through all the hospitals in Kunming. The money also took a lot, but still failed to find out the cause. Ms. Xin, who is almost desperate, took the test and put the results of all the tests and tests of Mr. Liu on the online international clinic. The doctor consulted Mr. Liu online. One of the doctors in Singapore speculated that Mr. Liu had a gradual freezing disorder. Ms. Xin said: "I didn't believe it at the time. I have never heard of this disease. How could it come to my husband? But this is the only hope. I will inquire about the treatment institutions through friends and the Internet." Under persuasion, the husband and wife went to the neurology department of Beijing North Medical Third Hospital for medical treatment.

Crash, 15 hours, expert number, etc.

The disease hidden in Liu Fuping's body makes the doctor and family helpless. In addition, his body is getting worse and worse, and the cause has become urgent. At the end of April 2019, after many inquiries, the husband and wife went to the Department of Neurology, Beijing North Medical Third Hospital, and was the expert number. Ms. Xin was discharged from 4 pm to 7:00 the next morning. Ms. Xin told the reporter: "In the queue, every time a period of time, the security must be named. If more than 3 people are absent, they will start to brush the number. The time in front of it will be wasted. During that time, I didn’t even go to the toilet. Dare to go, I’m afraid I can’t get it.”

The hard work pays off, after the number is checked, after some inspection, the result comes out. But the result is like a blue sky beaten on Ms. Xin’s family. Mr. Liu was diagnosed with gradual freezing. Fan Dongsheng, dean of the North Hospital Third Hospital, told Ms. Xin: "To accept this reality, this disease is one of the top five serious diseases in the world. At present, there is no particularly effective treatment in medicine." Ms. Xin told the reporter: "The doctor suggested that I can start working. Prepare wheelchairs, ventilators, etc. If family conditions permit, you can take an imported drug that is so powerful, but it can only play a slowing role, costing five or sixty thousand yuan per year." For economic reasons, husband and wife Had to turn back to Kunming. Speaking of this, Ms. Xin shed tears: "He was still able to go, the doctor asked me to prepare a wheelchair, a ventilator, how serious it was, I don't even think about it."

Guardian "I even trotting in the toilet"

Back in Kunming, Ms. Xin has not given up her treatment for her husband. Chinese medicine and Western medicine only go to hearing if there is hope. Once, Ms. Xin listened to her friends and said that Dehong had an old Chinese doctor who had a good medical skill and immediately packed up the things. He took Mr. Liu to Dehong for more than two months. Ms. Xin told reporters: "At the time, his legs were not working, and he could only walk. I said to him, 'If it is cured, we can go out to travel often. If it is not cured, this is us. I went out for the last time. 'It took so long, I hope that I can go to Dehong to have a miracle."

Mr. Liu’s situation is unstable and an emergency may occur at any time. You must call your doctor right away. Therefore, Ms. Xin basically did not leave her husband except for the payment of medicine. Ms. Xin said: "I don't dare and don't want to leave him half a step. I even go to the bathroom. I am running. I am afraid that I will have an accident in the few minutes I left. This will be my permanent. Regrets." From Mr. Liu's admission to the hospital on July 17th, Ms. Xin left the hospital for an afternoon to help her 10-year-old daughter to open a parent meeting. Even the daily meal was sent by someone.

Wish "to keep the husband alive with dignity"

Ms. Xin decided to take care of her family and inherit the hard-working business of her husband, Liu Fuping, to renew her husband’s medical expenses and prevent her from breaking the food. Self-sufficiency to prop up this home. Ms. Xin said: "To let the lover see that he is still feeding this family, the disease has not turned him into a useless person, let him live with dignity." Ms. Xin told reporters that she has two wishes, one It is hoped that the lover's illness will be miraculous, and the second is that the store can continue to operate.